{"id":28,"date":"2015-05-20T09:13:59","date_gmt":"2015-05-20T08:13:59","guid":{"rendered":"http:\/\/127.0.0.1\/projects\/afg\/?page_id=28"},"modified":"2021-04-01T10:49:26","modified_gmt":"2021-04-01T09:49:26","slug":"objectifs","status":"publish","type":"page","link":"https:\/\/www.glycogenoses.org\/st_qlfctn\/qui-sommes-nous\/objectifs\/","title":{"rendered":"Objectifs"},"content":{"rendered":"<section id=\"bt_section6a1c0c525daf8\"  class=\"boldSection gutter\" ><div class=\"port\"><div class=\"boldCell\"><div class=\"boldCellInner\"><div class=\"boldRow  \" ><div class=\"boldRowInner\"><div class=\"rowItem col-md-12 col-ms-12  btTextLeft\"  ><div class=\"rowItemContent\" ><div class=\"btClear btSeparator bottomSemiSpaced noBorder\" ><hr><\/div><\/div><\/div><\/div><\/div><div class=\"boldRow  \" ><div class=\"boldRowInner\"><div class=\"rowItem col-md-12 col-ms-12  btTextLeft\"  ><div class=\"rowItemContent\" ><header class=\"header btClear large btDash bottomDash  btAccentDash\" ><div class=\"dash\"><h2><span class=\"headline\"><em> Objectifs <\/em><\/span><\/h2><\/div><div class=\"btSubTitle\">Les objectifs principaux de l\u2019association sont :<\/div><\/header><div class=\"btClear btSeparator bottomExtraSmallSpaced noBorder\" ><hr><\/div><div class=\"btText\" ><\/p>\n<ul>\n<li>\n<h5>Se regrouper,<\/h5>\n<\/li>\n<li>\n<h5>Rompre l&rsquo;isolement des familles,<\/h5>\n<\/li>\n<li>\n<h5>Partager les diff\u00e9rentes informations obtenues, par le biais d&rsquo;un bulletin,<\/h5>\n<\/li>\n<li>\n<h5>Se faire conna\u00eetre d&rsquo;un public plus nombreux pour sortir de l&rsquo;anonymat dans lequel les personnes atteintes de maladies g\u00e9n\u00e9tiques rares et leurs proches se trouvent,<\/h5>\n<\/li>\n<li>\n<h5>Inciter la recherche. Malgr\u00e9 les progr\u00e8s effectu\u00e9s ces derni\u00e8res ann\u00e9es, nous devons inciter la recherche \u00e0 nous aider pour am\u00e9liorer encore les r\u00e9sultats, et peut-\u00eatre arriverons-nous, \u00e0 force de volont\u00e9 et de courage \u00e0 une r\u00e9mission des glycog\u00e9noses,<\/h5>\n<\/li>\n<li>\n<h5>Renforcer notre action sur les avanc\u00e9es m\u00e9dicales pr\u00e9cises : ex type II. Utilisation des fonds dans des domaines pr\u00e9cis et aider nos malades \u00e0 participer \u00e0 des essais,<\/h5>\n<\/li>\n<li>\n<h5>Soutenir une politique europ\u00e9enne sur les maladies rares et les m\u00e9dicaments orphelins : Eurordis,<\/h5>\n<\/li>\n<li>\n<h5>Favoriser le rapprochement avec d&rsquo;autres associations,<\/h5>\n<\/li>\n<li>\n<h5>Achever l&rsquo;\u00e9tat des lieux des connaissances sur les Glycog\u00e9noses.<\/h5>\n<\/li>\n<\/ul>\n<h5>Pour aider ces enfants et ces jeunes adultes ou obtenir de plus amples informations sur les glycog\u00e9noses, vous pouvez nous contacter aux diff\u00e9rentes adresses de l&rsquo;A.F.G.<\/h5>\n<p>\n<\/div><\/div><\/div><\/div><\/div><div class=\"boldRow  \" ><div class=\"boldRowInner\"><div class=\"rowItem col-md-12 col-ms-12  btTextLeft\"  ><div class=\"rowItemContent\" ><div class=\"btClear btSeparator bottomSemiSpaced noBorder\" ><hr><\/div><\/div><\/div><\/div><\/div><\/div><\/div><\/div><\/section>\n","protected":false},"excerpt":{"rendered":"","protected":false},"author":7,"featured_media":0,"parent":107,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":[],"_links":{"self":[{"href":"https:\/\/www.glycogenoses.org\/st_qlfctn\/wp-json\/wp\/v2\/pages\/28"}],"collection":[{"href":"https:\/\/www.glycogenoses.org\/st_qlfctn\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/www.glycogenoses.org\/st_qlfctn\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/www.glycogenoses.org\/st_qlfctn\/wp-json\/wp\/v2\/users\/7"}],"replies":[{"embeddable":true,"href":"https:\/\/www.glycogenoses.org\/st_qlfctn\/wp-json\/wp\/v2\/comments?post=28"}],"version-history":[{"count":13,"href":"https:\/\/www.glycogenoses.org\/st_qlfctn\/wp-json\/wp\/v2\/pages\/28\/revisions"}],"predecessor-version":[{"id":2651,"href":"https:\/\/www.glycogenoses.org\/st_qlfctn\/wp-json\/wp\/v2\/pages\/28\/revisions\/2651"}],"up":[{"embeddable":true,"href":"https:\/\/www.glycogenoses.org\/st_qlfctn\/wp-json\/wp\/v2\/pages\/107"}],"wp:attachment":[{"href":"https:\/\/www.glycogenoses.org\/st_qlfctn\/wp-json\/wp\/v2\/media?parent=28"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}